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Kapittel 1.3United around the brain: Pivotal stakeholders in the work

The work relating to the background report and draft was organised in project form, with a project owner, project group and steering group. Brain health is a broad and extensive field and many people are affected by brain diseases or involved in brain health in different ways. As a result, the project organisation also included a partnership consisting of various stakeholders. In addition, a working group was created to assist in the work to draft the updated brain health strategy.

The Directorate of Health has received input and experienced considerable engagement from individuals, user organisations and the health and care services, as well as professional environments, both nationally and internationally. The dialogue with the stakeholders involved was crucial for a holistic and inclusive approach in the work to draft the updated brain health strategy. The Directorate of Health would like to thank everyone who contributed valuable knowledge and engagement in the work.

Project group

The project was anchored in the specialist health service’s department of professional development within the Directorate of Health and consisted of a project group which coordinated the work and drafted an updated brain health strategy and associated background report.

Project group composition

Name

Role

Silja Nicoline Angellsen

Project manager

Kristiane Bugge Dugstad

Project group member

Kaja Fjell Jørgensen

Project group member

Maren Trebler

Project group member

Partnership

The partnership consists of stakeholders invited by the Directorate of Health. It performed an advisory function in the work on the brain health strategy. The partnership will be a driving force in the work relating to the brain health strategy, by promoting new ideas and creating dialogue and collaboration. This is being done by the participants bringing up challenges and discussing possible solutions within the work on brain health.

The participants represent user organisations, the specialist health service, the municipal health and care services and other relevant professional environments.

Representatives in the National Brain Health Strategy partnership

Organisation

Name

Norwegian Brain Council (hjerneradet.no) 

Henrik Peersen

Magne Wang Fredriksen

John Stigum

FFO (ffo.no) (Norwegian Federation of Organisations of Disabled People)

Eva Buschmann

SAFO (safo.no) (Norwegian Forum of Disabled Peoples' Organizations)

Grethe Müller

Norwegian College of General Practice (legeforeningen.no) 

Marte Kvittum Tangen

South-Eastern Norway Regional Health Authority (helse-sorost.no) 

Trude Hirgum Jahren

Western Norway Regional Health Authority (helse-vest.no) 

Anette Storstein

KS (ks.no) (Norwegian Association of Local and Regional Authorities),

Anne Gamme

City of Oslo, Agency for Health (oslo.kommune.no)

Hilde Therese Katralen

Norwegian Association of Youth with Disabilities (ungefunksjonshemmede.no) 

Ingrid Thunem

Expert Panel for Neurology Nursing (nsf.no) 

Annbjørg Hausken

The various stakeholders in the partnership will work together to contribute to the implementation of measures, but the established responsibilities, authorities and reporting lines of the participants will not change in any way.

The collaboration between the Directorate of Health and the partnership is a vital key component in the work on the brain health strategy. It will therefore be crucial to maintain the partnership in the follow-up to the updated brain health strategy. At the same time, it will be natural to conduct an evaluation of how the partnership has worked, its organisation and the composition of stakeholders.

Working group

The working group consisted of representatives from various departments and divisions within the Directorate of Health of relevance to brain health and brain diseases. The working group also included a representative from the Norwegian Brain Council.

The working group’s mandate was to ensure that the content of the background report and the draft was in line with ongoing and existing assignments, measures and work of relevance to brain health. The working group was also tasked with providing specialist advice to the project team. As and when appropriate, the members of the working group submitted written contributions to the background report and draft within their respective disciplines. In addition, the involvement of the Norwegian Brain Council was intended to ensure user participation. The participant from the Norwegian Brain Council did not have access to written input from the other members of the working group. This ensured that the process was conducted in an orderly manner and avoided role-related conflicts.

Last update: 24. april 2025